Friday afternoon I found out that I have pressure on my optic nerve from the increasing pressure in my brain. I am actively loosing vision in my left eye. In order for me not to go permanently blind, I need to have the pressure released ASAP.
This morning my neurosurgeon's office called and told me that I needed to be seen today. He has decided to turn the shunt back on. This concerned me greatly because I was over-draining so badly with a VP shunt. But he is going to add a second high pressure valve to the shunt to keep the pressure high enough in my brain that I shouldn't have low pressure headaches BUT it should drain enough to keep me from going blind. Hopefully vision will be restored on its own in my left eye and no permanent damage has been done.
So back to the operating room I go. I don't know the date yet, I just know that it has to be done in a big hurry. This surgery will be outpatient but that doesn't give me any sort of comfort whatsoever. It's going to be my 27th surgery. I mean how much can one person take? Besides I am dealing with this during the middle of a separation/divorce. I was told just over a month ago that my husband is divorcing me. Our family dynamic has changed dramatically and I already feel like a single mom because he has moved on and it's been extremely difficult on me. Please keep me in your thoughts and prayers because I am in a very bad place mentally. All I can do is pray that this is the last surgery for awhile and that something much better is in store for me.
This blog is about living my life with Hydrocephalus. I acquired it shortly after birth so I have many experiences to share. I will be very open about my journey. Feel free to comment, ask questions, suggest a topic for me to write about and share the posts. Please keep in mind that I am just one person out of millions. We may not all share the same symptoms and experiences but we can certainly be there for one another. Thanks for reading!!
